Like Revere, many of the women who become caregivers end up having to quit their jobs. "And so the most common way of supporting persons with dementia is the daughter." "Here in the United States, unfortunately, there is not a very strong system of paid support for people with dementia," says Elena Portacolone, an associate professor who studies aging and cognitive impairment at UCSF's Institute for Health & Aging.
About two-thirds of these caregivers are women.
Every year, an estimated 16 million Americans provide more than 17 billion hours of unpaid care for family or friends suffering from Alzheimer's disease or other dementias, according to the CDC. The task of caring for people with dementia usually falls on family members. Singing can help relieve dementia symptoms and maintain brain function, and can help individuals communicate when they no longer have words. sing the national anthem along with dementia expert Teepa Snow in spring of this year. Nearly all forms of dementia get worse over time, and there is no cure, although there are some treatments.Ĭlients at the Florence Gray Soltys Adult Day Health Program in Hillsborough, N.C. The "unmet need"Īlzheimer's disease is the most common form of dementia, but other forms include vascular dementia, mixed dementia, dementia with Lewy bodies, and frontotemporal dementia, according to the CDC.
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Content with the hashtag "dementia" has already racked up more than 4 billion views on TikTok, as younger generations, already accustomed to sharing their lives online, now find themselves caring for aging loved ones - often with little preparation and no idea how to actually do that. Revere has both found a supportive community, and helped build one.Ĭaregivers for people with dementia have flocked to social media, but TikTok has been an especially helpful platform. Many of her most ardent fans have told her that they feel like they personally know her and her mom.
Over the past few years, Revere's account, has become wildly popular, with more than 650,000 followers. Barely 10 years since Revere left home, she found herself moving back in with her mom and her grandmother - this time as their full-time What were your first signs? #momofmymom #dementia #alzheimer #cognitivedecline ♬ Pieces (Solo Piano Version) - Danilo Stankovic It would take nearly a year before they got the diagnosis that confirmed what Revere already suspected: Her mother had Alzheimer's, too.
while also being afraid and young and scared and not knowing what to do." "And then it became about me coming home to be in a house with three generations of trauma, and working my way through that. "My mom was taking care of her mom, who had Alzheimer's, not telling anybody how hard it was or that she needed help, or that it was completely stressing her out," Revere says. This was just a few years after Hindmon herself had moved in with her own mother, Joyce Hindmon, Revere's grandmother, after the matriarch had been diagnosed with Alzheimer's. A slim, regal, self-declared "health nut," Hindmon was now forgetting to pay bills and couldn't remember who she was talking to on the phone. Her mother, Lynn Hindmon, was a devout Evangelical who worked for her local church. This story was produced in partnership with Kaiser Health News.
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